Friday, October 10, 2008

Greetings from Houston

We are now in the MD Anderson system.  I was expecting something similar to the Scottsdale Mayo Clinic.  This place is more like a Titanic versus a row boat when compared to Mayo - very, very big.  This campus contains many hospitals of which MD Anderson is just one.  So it was a bit harder to get around. 
The good news is that there is a specialist here who is known for his work in my condition and that I do fit into a study of an FDA drug that is just about to be released.  This drug allegedly improves the quality of life in myelofibrosis, which is what I have, in 4 of 5 patients.  
I shall have to discontinue my current therapy for two weeks and then return to Houston to begin the new treatment, which fortunately, is in a pill form.  I hate needles.
So we shall just have to wait and see if I am one of the 4 in 5.
We shall return to LV in a few days and hopefully I can see some of you before we return to LV.
Of course, the new therapy does not cure the disease nor does it extend life, but good days are certainly better than bad ones.
Love and Kisses
JLK

1 comment:

Mitchy said...

That's good to hear! You are always in my thoughts!
Love, Shannon